In our last post we talked about how our focus has shifted to raising awareness and funds for CDH1/Hereditary Diffuse Gastric Cancer research. Our biggest hope is Dr. Parry Guilford, a researcher in New Zealand who is working on a drug that would be taken every 2-4 years to kill off early cancer cells in the stomach, meaning a prophylactic total gastrectomy would no longer be the course of preventing HDGC in people with CDH1 mutations. We have three little boys who have a 50/50 chance of carrying our same CDH1 mutation and in about 7 years the first of these boys will be tested to see if they are a carrier. While we are so grateful we had the option of removing our stomachs when we found out about the mutation, we obviously want better for our children. Dr. Guilford is confident in the research his team is doing and truly believes our children will have better options than we had. It takes a lot of money and time to bring a drug to market, so we want to help provide funds for this project and also let the world know about advancements taking place in this field.
We are so excited about our first fundraising project and hope you all love the shirt as much as we do and support this effort. Please don’t hesitate to reach out to me or Nicole if you have any questions about the shirts or ordering.